Developing and Sustaining Community-Based Participatory Research Partnerships: A Skill Building Curriculum

Ausubel K. (2004). Ecological Medicine: Healing the Earth, Healing Ourselves (The Bioneers Series). San Francisco: Sierra Club Books.

Community Health Scholars Program. Definition of Community-Based Participatory Research. http://www.sph.umich.edu/chsp/program/index.shtml

Israel BA, Schulz AJ, Parker EA, Becker AB. (1998). Review of Community-Based Research: Assessing Partnership Approaches to Improve Public Health. Annual Review of Public Health 19: 173-202.

Levenson J. (2004). The Secret Epidemic: The Story of AIDS and Black America. New Yorik City: Random House Inc.

Pritchard IA. (2002). Travelers and Trolls: Practitioner Research and Institutional Review Boards. Educational Researcher. 31(3): 3–13.

Public Health Leadership Society. (2002). Principles of the Ethical Practice of Public Health, Version 2.2. http://www.apha.org/codeofethics/

Viswanathan M, Ammerman A, Eng E, Gartlehner G, Lohr KN, Griffith D, Rhodes S, Samuel-Hodge C, Maty S, Lux, L, Webb L, Sutton SF, Swinson T, Jackman A, Whitener L. (2004). Community-Based Participatory Research: Assessing the Evidence. Evidence Report/Technology Assessment No. 99 (Prepared by RTI–University of North Carolina Evidence-based Practice Center under Contract No. 290-02-0016). AHRQ Publication 04-E022- 2. Rockville, MD: Agency for Healthcare Research and Quality.

Wang CC, Redwood-Jones YA. (2001). Photovoice Ethics: Perspectives from Flint Photovoice. Health Education & Behavior 28(5): 560-572.

Unit 1 Recommended Resources

Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, Social Sciences and Humanities Research Council of Canada. (1998 (with 2000, 2002 and 2005 amendments). Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans. http://www.pre.ethics.gc.ca/english/policystatement/policystatement.cfm

Community IRB Member: Neighbor and Partner. This US Department of Education website has information geared towards community members who are serving on institutional IRBs. http://www.orau.gov/communityirb

Cornwall A, Jewkes R. (1995). What is Participatory Research? Social Science and Medicine 41(12):1667-1676.

Downie J, Cottrell B. (2001). Community-Based Research Ethics Review: Reflections on Experience and Recommendations for Action. Health Law Review 10(1): 8-17.

Gostin LO. (Ed.) (2002). Public Health Law and Ethics: A Reader. University of California Press and Milbank Memorial Fund. http://www.publichealthlaw.net/Reader/toc.htm

Green L. (2004). Ethics and Community Based Research: Commentary on Minkler. Health Education and Behavior. 31(6): 698-701.

Khanlou N, Peter E. (2005). Participatory Action Research: Considerations for Ethical Review. Social Science and Medicine. 60(10): 2333-40.

Marshall P, Rotimi C. (2001). Ethical Challenges in Community-Based Research. The American Journal of the Medical Sciences 322(5): 241-245.

Minkler M. (2004). Ethical Challenges for the “Outside” Researcher in CBPR. Health Education and Behavior. 31(6): 684-697.

Protecting Human Subjects Newsletter, published by the US Department of Education: Issue focused on CBPR available at http://www.science.doe.gov/ober/humsubj/fall03.pdf

Research Ethics Tip Guide: http://www.uml.edu/centers/CFWC/programs/researchethics/research_ethics1.htm

Research Ethics Training Curriculum for Community Representatives (RETC-CR): Family Health International's Office of International Research Ethics has developed a dynamic and innovative curriculum to empower community representatives through training and education to act as a competent voice for research participants worldwide. Developed and field-tested in eight countries, the RETC-CR helps community representatives to understand the research process and their roles and responsibilities as partners of the research team. The Curriculum also explains the corresponding roles and responsibilities of Ethics Committees/IRBs and Researchers. http://www.fhi.org/en/RH/Training/trainmat/ethicscurr/retccr.htm

Research Ethics Website provides course development, training, educational resources and case study development on improving research ethics in environmental health. Proceedings are available from the project’s 2003 national conference on research ethics and CBPR. http://www.researchethics.org

“A Bridge Between Communities: The Detroit Community-Academic Urban Research Center” video, produced by Vivian Chávez in June 2000, is a 32-minute documentary that introduces viewers to the theory and practice of CBPR with the Detroit Community-Academic Urban Research Center (URC) as a case study. The video tells the story of the history and activities of the URC partnership and highlights the challenges and benefits of conducting community-based participatory research. For information on how to obtain a copy of the video, please contact Robert McGranaghan, Detroit URC Project Manager, at [email protected]. Several excerpts from the video can be viewed throughout the URC web site: http://www.sph.umich.edu/urc/

Chávez V, Israel B, Allen AJ 3rd, DeCarlo M, Lichtenstein R, Schulz A, Bayer IS, McGranaghan R. (2004). A Bridge Between Communities: Video-making using principles of community-based participatory research. Health Promotion Practice. 5(4): 395-403.

Israel BA, Schulz AJ, Parker EA, Becker AB, Allen AJ 3rd, Guzman R. (2003). Critical Issues in Developing and Following Community Based Participatory Research Principles. In Minkler M, Wallerstein N (eds.) Community-Based Participatory Research for Health. San Francisco: Jossey-Bass Publishers. To receive a 15% discount, order through the CCPH website: www.ccph.info

Minkler M, Hancock T. (2003).Community-Driven Asset Identification and Issue Selection. In Minkler M, Wallerstein N (eds.) Community-Based Participatory Research for Health. San Francisco: Jossey-Bass Publishers, 135-154. To receive a 15% discount, order through the CCPH website: www.ccph.info

Schultz AJ, Parker EA, Israel BA, Becker AB, Maciak BJ, Hollins R. (1998). Conducting a Participatory Community-Based Survey for a Community Health Intervention on Detroit’s East Side. Journal of Public Health Management and Practice 4(2): 10- 24.

Unit 2 Recommended Resources

Jewkes R, Murcott A. (1998). Community Representatives: Representing the "Community"? Social Science and Medicine 46:843-858.

Kone A, Sullivan M, Senturia K,Chrisman N, Ciske S, and Krieger J. (2000). Improving Collaboration Between Researchers and Communities. Public Health Reports 115:243-248.

MacQueen KM, McLellan E, Metzger D, Kegeles S, Strauss RP, Scotti MA, Blanchard L, Trotter R. (2001). What is Community? An Evidence-Based Definition for Participatory Public Health. American Journal of Public Health 91:1929-1937.

Sullivan M, Kone A, Senturia K, Chrisman N, Ciske S, Krieger J. (2001). Researcher and Researched – Community Perspectives: Towards Bridging the Gap. Health Education & Behavior 28:130-149.

Schulz AJ, Israel BA, Selig SM, Bayer IS. (1998). Development and Implementation of Principles for Community-Based Research in Public Health. In Ray H. MacNair (ed.) Research Strategies for Community Practice, New York: The Haworth Press, Inc., pp. 83-110.

Seifer SD, Shore N, Holmes SL. (2003). Developing and Sustaining Community-University Partnerships for Health Research: Infrastructure Requirements. Seattle, WA: Community-Campus Partnerships for Health. www.ccph.info

Unit 3 Recommended Resources

“A Bridge Between Communities: The Detroit Community-Academic Urban Research Center” video, produced by Vivian Chávez in June 2000, is a 32-minute documentary that introduces viewers to the theory and practice of CBPR with the Detroit URC as a case study. The video tells the story of the history and activities of the URC partnership and highlights the challenges and benefits of conducting CBPR. For information on how to obtain copies of the video, please contact Robert McGranaghan, Detroit URC Project Manager, at [email protected]. Several excerpts from the video can be viewed throughout the URC web site: http://www.sph.umich.edu/urc/

Israel BA, Lichtenstein RL, Lantz PM, McGranaghan RJ, Allen A, Guzman JR, Softley D, Maciak BJ. (2001). The Detroit Community-Academic Urban Research Center: Development, Implementation and Evaluation. Journal of Public Health Management and Practice 7(5), 1-20.

The Facilitator contains tips, tools, articles, and resources on facilitation. http://www.thefacilitator.com

Guidelines and Categories for Classifying Participatory Research Projects in Health. Larry Green and colleagues developed a set of guidelines that can be used to appraise the extent to which research projects align with principles of participatory research. http://lgreen.net/guidelines.html

Mobilizing for Action through Planning and Partnership is a community-wide strategic planning and implementation tool for improving community health. A program of the National Association of County and City Health Officials, the model includes a conceptual overview, practical guidance, tools, and case examples. http://www.naccho.org/topics/infrastructure/MAPP.cfm

Collaborative Decision-Making. Center for Collaborative Planning. www.connectccp.org

Carolo H & Travers R (2005). Challenges, complexities and solutions: A unique HIV research partnership in Toronto, Canada.
Journal of Urban Health, 82(2), ii42.

Paez-Victor M. (2002). Remarks at First International Conference on Inner City Health, Toronto Canada.

Unit 4 Other Recommended Resources

Dukes EF, Piscolish M, Stephens S. (2000) Reaching for Higher Ground in Conflict Resolution: Tools for Powerful Groups and Communities. San Francisco, CA: Jossey-Bass Publishers. To receive a 15% discount, order through the CCPH website.

The People’s Institute is recognized as one of the foremost anti-racism training
and organizing institutions in the nation. Over the past 24 years, The People’s Institute Undoing Racism™/ Community Organizing process has impacted the lives of nearly 100,000 people both nationally and internationally. Through this process, it has built a national collective of anti-racist, multicultural community organizers who do their work with an understanding of history, culture, and the impact of racism on communities. http://www.pisab.org/

Reaching Higher Ground: A Guide for Preventing, Preparing for, and Transforming Conflict for Tobacco Control Coalitions provides practical advice for ways of working in coalitions and partnerships that resolve real problems while strengthening relationships. The tools and strategies described in this book can make any collaborative undertaking more successful by approaching problems and people in ways that impart dignity and respect. It is possible to grow in community, through conflict, by engaging one another in ways that reach not only common ground, but higher ground. http://www.ttac.org/products/pdfs/Higher_Ground.pdf

Center for Civic Partnerships. (2001) Sustainability Toolkit: 10 Steps for Maintaining your Community Improvements. Public Health Institute.

Community Tool Box. (1999). University of Kansas, Work Group on Health Promotion and Community Development. Chapter 42, Section 1. http://ctb.ku.edu

Israel BA, Lichtenstein R, Lantz P, McGranaghan R, Allen A, Guzman JR, Softely D, Maciak B. (2001). The Detroit Community-Academic Urban Research Center: Lessons Learned in the Development, Implementation and Evaluation of a Community-Based Participatory Research Partnership. Journal of Public Health Management and Practice 75(5), 1-19

Seifer SD. (October 2005). Message from our Executive Director. In: Partnership Matters Newsletter, Vol. VII No. 20. Community-Campus Partnerships for Health
http://depts.washington.edu/ccph/PM_100705.html#MessageFromExecDirector

Unit 5 Recommended Resources

Green LW. (2003). Tracing Federal Support for Participatory Research in Public Health. In: Minkler M, Wallerstein N (Eds). Community Based Participatory Research for Health. San Francisco, Calif: Jossey-Bass Publishers: 410–418. To receive a 15% discount, order through the CCPH website: www.ccph.info

Unit 6 Recommended Resources

For a listing of journals that publish CBPR, visit http://depts.washington.edu/ccph/links.html#Journals

Effective Policy Advocacy Curriculum (2003). Learning Circle Series, The Praxis Project. http://www.thepraxisproject.org/tools.html

Minkler M, Blackwell AG, Thompson M, and Tamir H. (2003) Community-Based Participatory Research: Implications for Public Health Funding. American Journal of Public Health. 93(8):1210-1213.

Ritas R. (2003). Speaking Truth, Creating Power: A Guide to Policy Work for Community-Based Participatory Research Practitioners. Seattle: Community-Campus Partnerships for Health. This toolkit is designed for CBPR partners who want to create or change policies that affect health in their communities. http://depts.washington.edu/ccph/pdf_files/ritas.pdf

Themba M, Minkler M (2003). Influencing Policy Through Community-Based Participatory Research. In M. Minkler and N. Wallerstein (Eds). Community-Based Participatory Research for Health. San Francisco: Jossey-Bass Publishers.

Israel BA, Eng E, Schultz AJ, Parker EA (Eds). (2005). Methods in Community-Based Participatory Research for Health. San Francisco: Jossey-Bass Publishers. To receive a 15% discount, order through the CCPH website. This book provides a comprehensive and thorough presentation of CBPR study designs, specific data collection and analysis methods, and innovative partnership structures and process methods. This book informs students, practitioners, researchers, and community members about methods and applications needed to conduct CBPR in the widest range of research areas—including social determinants of health, health disparities, health promotion, community interventions, disease management, health services, and environmental health.

Center for Civic Partnerships. (2001). Sustainability Toolkit: 10 Steps for Maintaining your Community Improvements. Public Health Institute.

Unit 7 Recommended Resources

Keeping Fit in Collaborative Work: A Survey to Self-Assess Collaborative Functioning.
Center for Collaborative Planning. http://www.connectccp.org/resources/10fit.pdf

Lantz PM, Viruell-Fuentes E, Israel BA, Softley D, Guzman JR. (2001) Can Communities and Academia Work Together on Public Health Research: Evaluation Results from a Community-Based Participatory Research Partnership in Detroit. Journal Urban Health. 78(3), 495-507.

Building Sustainable Non-Profits: The Waterloo Region Experience (2004). Centre for Research and Education in Human Services & Social Planning Council of Cambridge and North Dumfries. This handbook highlights ways that non-profit organizations can improve their sustainability, including partnership building, leadership and governance, relevance/research, and organizational culture. It applies a CBPR approach or philosophy to all four. http://www.crehs.on.ca/downloads/sustainability%20manual.pdf

Power of Proof: An Evaluation Primer is an online resource that provides background information about evaluation as well as information on evaluation planning, writing evaluation objectives, collecting data, stages of evaluation, interpreting evaluation data, and reporting results. Designed for use by program personnel, rather than evaluation professionals, it can be used to guide program development and goal-setting, as well as evaluation. http://www.ttac.org/power-of-proof/index.html